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Ethical Issues
Informed Consent
Informed consent
Why we need informed consent
Is informed consent always required for tissue collection?
Who should conduct informed consent discussions with potential donors?
Is pre-surgical consent preferable to post-surgical consent?
Disclosures for "informed consent"
Why would individuals refuse?
Is open-ended consent ethical?
What is tiered consent?
Consent for minors
Opting in/opting out
What is group consent?
Consent for postmortem donation
Withdrawing consent
Redirecting remaining samples
Risk/benefit analysis
Should researchers report results to tissue donors?
This guide was funded through the generous support of the Greenwall Foundation (2002-2004)
© 2004 University of Southern Maine Bioethics Project
Last Revision: 27 Dec 2005