Research Methods: Data Systems

Dementia in Maine: Characteristics, Care, and Cost Across Settings [CHARTBOOK]

Abstract: 

The World Health Organization and Alzheimer’s Disease International have recommended that dementia be considered a public health priority for all nations. The number of people with Alzheimer’s disease in Maine is expected to nearly double from about 26,000 persons in 2010 to nearly 50,000 by 2030. As the oldest state in the nation, Maine faces the impending impact of this disease on its social systems, community resources and its health and long term care systems.  In particular, service and use patterns highlighted in this report indicate that Maine’s long term care system is increasingly becoming a system of care for people with dementia.

This report provides a baseline picture of the current use of services by people with and without dementia in Maine. While this provides a comprehensive view of those accessing services through state funded home care programs or other MaineCare funded long term care services, it does not include the costs of informal care by caregivers, friends and family members. Nor does it include the out-of-pocket costs that many incur with private resources to care for a family member. We hope, however, that this information will be useful to those who are planning for the future of Maine’s long term care system and the needs of people with dementia and their families and caregivers.

Suggested Citation: Fralich J, Bratesman S, Olsen L, et al. Dementia in Maine: Characteristics, Care, and Cost Across Settings. Portland, ME: University of Southern Maine, Muskie School of Public Service; December, 2013.

For more information contact: Julie Fralich Julief@usm.maine.edu; 207-780-4848; Stuart Bratesman sbrates@usm.maine.edu; or  Louise Olsen louiseo@usm.maine.edu

This report was prepared under a Cooperative Agreement between the Muskie School of Public Service, University of Southern Maine and the Maine Department of Health and Human Services, Office of Aging and Disability Services.  This work was funded under Cooperative Agreement number CA-ES-13-251.

Publication Type: 
Report
Publish Date: 
December 31, 2013
URL: 
http://muskie.usm.maine.edu/Publications/DA/Dementia-Maine-Chartbook-2013.pdf

Behavioral Risk Factor Surveillance System (BRFSS) Data Management & Analysis 2012-2013

Duration: 
10/1/2012 - 9/30/2013
Collaborators: 
Maine CDC
Abstract: 

Behavioral Risk Factor Surveillance System is one of Maine’s standard health behavior surveillance systems, data from which informs policy development, program planning, and other public health interventions for chronic disease prevention. This project will assist the Maine BRFSS coordinator and the Maine CDC to achieve BRFSS objectives. Muskie School staff will update the BRFSS interactive web query as well as maintain multiple-year standardized datasets, add the most recent year of data, and update documentation. Muskie staff will also perform other analyses as necessary, including multivariate and trend analyses to help the Maine CDC better understand prevalence, risk factors and disease management for health behaviors and conditions (such as diabetes, asthma, and cardiovascular disease) that impose a heavy burden on the residents of Maine and its health care system.

Start Date: 
Mon, 2012-10-01
End Date: 
Mon, 2013-09-30
Legacy Muskie ID: 
8 003

PANP Evaluation - OHHM

Duration: 
1/1/2007 - 1/30/2008
Abstract: 

This project will consist of the evaluation and data analysis activities of the Oxford Hills Health Moms project, an obesity prevention intervention of the Maine Physical Activity and Nutrition Program for Disease Control and Prevention.

Start Date: 
Mon, 2007-01-01
End Date: 
Wed, 2008-01-30
Legacy Muskie ID: 
4 511

Integrated Core Injury Prevention & Control Program, Year 1

Duration: 
1/1/2005 - 1/31/2006
Director: 
Barbara Poirier
Collaborators: 
Maine DHHS
Abstract: 

In 2005, the Department of Health and Human Services, (DHHS) and Muskie School jointly developed a proposal for the DHHS to enter into a five-year agreement wit the Centers for Disease Control and Prevention (CDC). The purpose of the grant is to develop a coordinated, strategic approach to reduce the incidence, and morbidity of injury through surveillance and prevention efforts. More specifically, this agreement will enable the Maine Injury Prevention Program (MIPP) to: Build a solid infrastructure for injury prevention; collect and analyze injury data; design, implement, and evaluate interventions through collaboration with partners; provide technical support and training; and reduce the burden of injury in Maine through public policy. The purpose of the one-year agreement is to fund program management to carry out the following activities: strategic, data-driven program planning and development, facilitated stakeholder involvement, technical report development using new surveillance data, grants management, technical assistance to organizations implementing injury prevention and control programs, stakeholders and staff on conducting evaluation; selecting best-practice interventions, program development (using logic models), using new injury surveillance data, reviewing progress towards project goals and objectives, and preparing and submitting reports to CDC.

Start Date: 
Sat, 2005-01-01
End Date: 
Tue, 2006-01-31
Legacy Muskie ID: 
3 053

APHL Quality Improvement

Duration: 
1/18/2007 - 1/17/2008
Abstract: 

complete an organizational assessment, including assessment of existing evaluation efforts in nine public health program areas. Project staff will use the assessment data to The Association of Public Health Laboratories will contract with Muskie School to design an organizational quality improvement plan and approach. Results and recommendation will be used by APHL to launch a more systemic quality improvement plan.

Start Date: 
Thu, 2007-01-18
End Date: 
Thu, 2008-01-17
Legacy Muskie ID: 
4 508

Substance Abuse Prevention Epidemiology

Duration: 
1/1/2005 - 1/30/2006
Collaborators: 
Strategic Prevention Framework, State Incentive Grant
Abstract: 

Muskie/IPSI will partner with Maine DHHS Office of Substance Abuse to provide epidemiological services for Maine?s Strategic Prevention Framework State Incentive Grant. Activities include providing staff support to a statewide epidemiological workgroup, conducting a state-level needs and resources assessment, and initiating GIS (Geographical Information System) mapping to identify existing data sources and their appropriate use. This will bring systematic, analytical thinking to the causes and consequences of substance abuse in order to effectively and efficiently utilize substance abuse prevention resources

Start Date: 
Sat, 2005-01-01
End Date: 
Mon, 2006-01-30
Legacy Muskie ID: 
2 227

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